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Saturday, 03 January 2009

  • Happy New Year (pictures)

    Shame on me for promising pictures and taking so long to come through.  My new computer and I have had a year long battle with my getting pictures off of my camera and into some useable format.  Now that the computer can no longer really be called 'new' and my camera was completely full of pictures, I have figured it out. Here are the long awaited pictures, at least long awaited by a certain auntie I know ;)

    William at my Grandma's house, stealing a cookie and thinking he is clever!

    274 273 275 276

    William enjoying some popcorn with his Grandma during half time at a Mustang's game:

    279

    A few shots from our vacation to northern Minnesota:

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    312

    William's first trim:

    327

    (forgive the messy mirror- he was also learning to brush his teeth and he splatter stuff everywhere)

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    William, unsure about artificial wildlife:

    331

    William playing at the park, it was the only time I could take his picture- the rest of the time he moves too fast:

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    A shot of William in a fun house mirror with his siblings:

    kidsfunhouse

    William sitting in an empty bathtub either telling us he wants a boat or that he IS a boat:

    WBoata

    William tired after a hard day of travel, asleep in his Happy Meal:

    Wsleeping in food

    This one is a bit dark, but sweet.  William and Daddy snoozing in a chair:

    WandDaddySleeping

    William checking out his cake on his 2nd Birthday:

    WandMommycake

    And finally William sleeping angelically- after tearing around like a tornado all day:

    WSleeping

    William continues to do very well.  He has gotten through this season without any raspatory complications.  He's had, and presently has, various cold bugs all of which he seems to be handling as well as any toddler.  He walks, runs, and climbs faster than any grown human can keep up with.  There are no residual signs of a problem with his hip.  He continues to receive physical therapy services once a week as we work to build his core strength, but if is monkey-like climbing is any indication we will soon have passed this hurdle as well.  Developmentally William has caught up to peers his age.  Mayo does not wish to see him again until this summer, a full year after the last time they saw him.  It will likely be our last appointment.  

    I post here very infrequently in large part because William's journey has merged with the rest of the family.  I am proud to say that he has graduated from being a special needs baby to an active, sometimes troublesome toddler.  I am happy to say that his father and I get upset with him for his outright naughtiness sometimes, like we have with our three older children before him.  William lead us on a an incredible journey that I feel has left a lasting, positive, impression on many people.  

    This is one of the last posts to this blog.  It no longer really makes sense for me to continue to update on one person in our large family.  While William continues to be amazing, his three siblings are equally so and I keep a blog about our family as a whole at another address that I would be happy to share with anyone who wishes to visit.  I will likely post again when we complete our final milestones in this upcoming year and then I will leave this site to bring hope to fellow pPROM parents and to share our incredible journey with anyone who wishes to see all we have accomplished. 

    This is William in November of 2006:

    Williamdollar

     

    Compare that to all the above pictures and just think about how far we've come!!

    I thank each and every one of you, whether this is your first visit, or your last, for the love you have shared with us.  I know my son is here because strangers, friends and family all loved him before he was born and all prayed, wished and hoped that William would join us in this world.  Thank you for helping us save our son.  God Bless You All!!

Thursday, 02 October 2008

  • Overview of William, Prayer Request and A Promise for Pictures

    William is doing really, really well. 

    He is walking!!   

    He attempts to jump, its hilarious.  He throws his arms back, squats down and stands up fast- never once leaving the ground.

    He talks a ton! He can name his siblings, he calls himself 'Wee-um'.  When he falls down he will tell you about his "howie".  He loves, loves, loves his "OomPA!" also known as Grandpa.  The Mayo specialists say he's caught up to his birth age in the language area!

    He can sing!

    He can climb- which is scary.  He can get up onto his siblings top bunks.  When we saw the hip surgeon he said that William definitely was doing well but to call him when he gets his first fracture. Oy!

    We're still working on a few things:

    His core strength is now what we'd like it to be and he is fairly unsteady.

    It seams that his left hip, that was operated on, is prone towards stiffness and on those days he has a hard time walking.

    And... I think that is all for challenges!!  William will be working with his fabulous Physical Therapist Judy and his awesome PT team and that will help him with his strength issues.  We think a little ibuprophen will help his hip.

    I'd be lying if I didn't say I sometimes still look at him and catch my  breath.  He's a walking, talking miracle and while it would be negative for his development to let that get in the way of his normal development- I am still so grateful. 

    I am still amazed and grateful for everyone's support.  There are tragic situations going on around us all the time, its easy to overlook the real live people involved and not get involved.  I'm so thankful you all got involved.  I strongly believe that William made it because so many people held him in their thoughts and prayers. 

    That is why sometimes on this site you have seen me post for others.  I know it means the world to people to know that others care.  My friend who recently lost her sweet baby saved this page to put in his scrap book and displayed it at his memorial service.  Your time to read about others, to care and to offer a prayer/comment/positive thought makes the difference to people- more than you know.

    So bear with me as I tell you about another family in need of prayers.  My friend Gina stood by William and I as we fought for his life.  She brought many people to this site by setting up a blogring and sharing his story.  I am sad to say it is time for me to return the favor.  Gina's sweet baby girl Taylor was diagnosed earlier this week with Leukemia.  Taylor is a vibrant, smart and loveable three-year-old girl.  I have full confidante that she will come through this, but this will be a hard road for her.  Taylor, Gina and Shane and Taylor's brothers Austin and Tegan could all use all the love, support, prayers and positive thoughts that are out there. 

     

    Taylor

    Thank you in advance for offering them the same support you offered us. If you'd like to join her blogring, please go to: http://groups.xanga.com/groups/group.aspx?a=1&id=2553754&t=3 to join.  Gina's Xanga can be found at: http://www.xanga.com/MissTaylorsMama- though I cannot promise that is a public Xanga.

     

    PS I promise to come back this weekend with lots of pictures of William!

     

Saturday, 13 September 2008

  • Brendan Michael

    Its raining today.  It should rain today, that makes it feel like the world is crying with us. 

    Brendan

    My good friend and her sweet baby "Scooter" lost their fight this morning. At 2:58 this morning at just 23 weeks 5 days Brendan Michael was born and stayed just an hour here on this Earth.  He was 1lb 4oz and 11 inches long and perfect in every way.  His tiny lungs just didn't have the ability to keep him here with us and he will be forever remembered, and forever missed.   His sweet mother and father very much need your prayers as they begin this journey of grief. 

    Sweet Brendan, you have made an impact on the hearts of many.  You are so strong and so brave.  Your mother loves you so and cherishes every moment you had together.  Your daddy is so proud.  We all miss you.

    No footprints are so small that they cannot change the world.

    footprint

     

     

     

     

Tuesday, 19 August 2008

  • William continues to help others...

    Its true that I've been pitifully behind in updating this blog.  As William grows he becomes healthier, stronger and busier.  I have less time to write and more to keep up with.  Most of the time his bumpy begining is not the first thing I think of anymore, but there are times I look at him and I'm just in awe.  He is such a miracle.

    Today a woman contacted me because she is just begining a struggle much like the one we were on.  I was not only able to exchange messages with her, but also speak to her on the phone.  She has a long road ahead of her, and there is no way to predict the outcome.  Talking to her was bittersweet.  I hope that having someone to talk to, someone who knows what its like will help in some small measure.  I know all to well how terrifying her path is and how little anyone can do for her. 

    William was greatly blessed in having so many people follow his story, pray for him and offer to help.  For all of you who are still following us please keep this little one and his family in your thoughts and prayers as well.  I hope that in a few short months we will be able to welcome yet another miracle into this world. 

Monday, 09 June 2008

  • June 08 Update

    Hello William Watchers!

    I'm pleased to write that William is doing very, very well.  So far we have not seen any sign of the perviously seen hernia.  I've been given lots of theories.  One possibility is that the hernia healed because hernias used to be treated by applying constant pressure through a truss.  What is a diaper taped up tight? A truss.  It could be that by reducing the hernia (pushing it back where it belongs) and then putting that diaper on snugly the hernia could heal.  Or, it really was a floating testicle that has fully descended now (but, forgive my saying so, he's a gifted man if that is the case).  Or it was a Hydrocele, a pocket of fluid in the inguinal canal, the path that the testies descend through.  Hydrocele's either are harmless and resolve themselves or are the precursor to a real hernia.  It could be any of these, or something else entirely- we may never know.

    William is still receiving PT every week.  He is not such a good sport for his therapist.  He's friendly and out going for everyone else, but for her he clings to me like a monkey.  However, he is making good progress.  I think he could walk if he just wasn't aware he was doing it.  This morning I watched him walk using just the flat side of a door for support- he's very, very close!  He is standing more and he is moving around a lot more.  He still shows a lot of favoring to the one side, but that is why we have PT. 

    He is starting to talk a lot more and he says fun things like "Whats that?" and "Hey- look at that?"  He also points to birds in the yard and yells "Kitty!- Woof woof woof".  He's a wee bit confused.

    I shall check in again soon- hopefully with some new pictures, but that is the report from the land of the William.  Hope everyone is doing well!

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williamsmommy07

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    • Name: Sara
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    • Member Since: 10/18/2006

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About Me

  • My name is Sara. I am the lucky mother of 4 beautiful children. Our youngest son, William, is a living, breathing, miracle. When I was just 13 weeks pregnant with William my water broke, leaving him with less than 5% chance to survive. There was an excellent chance that without that fluid his lungs would never grow and the risk of infection was great. Both our lives were at risk and we were told there was no hope. My husband, Adam, and I could not bear to give up on a little boy who was fighting so hard to live. We traveled to Rochester, home of the Mayo Clinic. There we underwent an experimental proceedure called the AmnioPatch. I spent 6 weeks in the antipartem unit at Methodist hospital. William was born at 29 weeks 2 days via emergency c-section. He was in tough shape at first, but after 13 weeks in the NICU at St. Mary's hospital we brought him home. His only complication was a dislcoated hip that he had surgery to repair on November 8th, 2007. We are excited to celeb

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